Policy for Rare Diseases

Welcome to the Rare Diseases Policy Patient Support Portal—a centralized platform designed to provide patients, families, caregivers, and healthcare professionals with easy access to the latest information on rare disease policies, support programs, and patient services.Providing support for diagnostic evaluation and treatment of rare diseases at designated Centres of Excellence (CoE).The portal offers comprehensive information to help patients navigate available support and government initiatives, including:

1. Latest updates on Rare Diseases Policy and guidelines
2. Eligibility criteria for patient support programs
3. Financial assistance and treatment support information
4. Patient registration and application processes
5. Approved treatment centers and healthcare facilities
6. Important notifications, circulars, and announcements
7. Helpful resources and official documents